Discussion about level of interest, agenda formation, and outreach
Use Cases to discuss here
- Interests: Patient information ; tracking users of pharmacy usage and control system in the US system (Adrian: not much opt-out— personal crusade ancedote); disclosure laws will hopefully
- Adrian: Individual identities different in medicine? Payer/patient identities?
- Sophie: Pacemakers and other IOT/med device authz/n issues
- Adrian: "person naked and alone in an ambulance use case"
- Sophie: usecase of interest to our org: Attributes tied to medical ID and clinical trials; open access data for vacc rates? consented opt-in to rates open data store, or consent to vacc proof for K-12 students, etc
- Bernard: identity for processes, machines, and verifiable data to track drugs anonymously; cross-silo data synchronization
- Bernard: importing untrackable, subpar drugs during Covid crisis;
- Adrian: medical devices and nonhuman use cases with human implications might be a better place to start for adoption and market-building
- "surescript" and singlepayer models are quite poor on consent for the identification of patients; incompetents and minors get even more complicated (delegation orthogonal to consent?);
- case in point: HIPPA overwhelmingly consent-free; GDPR has exceptions for de-identified data (or at least a loophole/grey zone)
- if patient identity needs to be voluntary and needs to be linked... that's a good focus
- Tom: I'd second the interest in consent; taxonomy intelligible to human beings
- Tom: Prior art and big picture overview: https://wiki.idesg.org/wiki/index.php/Health_Care_Profile